Helpful Family Caregiver Links - General
Connects callers to health and human resources in the community.
Visit www.informationandreferral.org or call 211 or 800-472-4716.
Advance care planning is deciding about the kind of health care you want at the end of life. Advance health care directives are the legal documents in which you give written instructions about your health care, in the event you cannot speak for yourself.
End-of-Life Care Partnership of Utah provides a step-by-step guide to advance care planning. The workbook, Tool Kit for Health Care Advance Planning, is designed to help individuals and families plan for the care they want at the end of life. The workbook is available through the End-of-Life Partnership at www.carefordying.org
Benefits.gov was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.
Visit https://www.benefits.gov/categories or call the National Contact Center at 1-800-FED-INFO (1-800-333-4636) to speak to an information specialist.
The CPD is Utah’s federally designated University Center for Excellence in Developmental Disabilities (UCEDD), and was the first UCEDD program in the nation to focus on the educational and social needs of children with disabilities. Over their 45-year history, the CPD has grown into one of the largest UCEDD programs in the nation and is recognized as a pioneer in research, training, technical assistance, and services for children and adults with disabilities, families, and the professionals who serve them. Visit http://www.cpdusu.org
The Utah Division of Services for People with Disabilities (DSPD) promotes opportunities and provides supports for people with disabilities to lead self-determined lives by overseeing home and community-based services for more than 5,000 people who have disabilities. Visit https://dspd.utah
195 North 1950 West, Salt Lake City, Utah. 84010
Call Intake and Eligibility at 1-877-568-0084 or email DSPD@utah.gov
This Disability Resource Directory is available to parents and professionals to help connect them with organizations, agencies, service providers and local disability support groups.
Provides education and resources on preparation for end of life including the publication Toolkit for Health Care Advance Planning. Visit www.caregfordying.org or call 888-918-4490.
Under the Family and Medical Leave Act (FMLA) of 1993, employees meeting eligibility requirements can take up to 12 weeks of unpaid, job-protected leave in a 12-month period to care for an ill family member. Check with your employer for eligibility questions or visit the website www.dol.gov/elaws/fmla.htm.
You may be able to claim a tax credit if you pay someone to care for your spouse or dependent who is not able to care for him/herself. The credit can be up to 30% of your expenses. For further information, contact the Internal Revenue Service online at www.irs.gov.
Provides assistance with questions on health insurance: Medicare, Medigap, long-term care insurance. Visit www.hsdaas.utah.gov/hip_contact_list.html or call 800-541-7735.
State-wide association for the home health, hospice, and personal care industries (see our website for a directory of local providers). HHAU also has a free Family Caregiver Division with regular meetings and newsletters. Visit www.hhau.org or call 801-312-9110.
Provides names of private lawyers who handle cases for a fee.
Visit www.utahbar.org or call 801-531-9077 or 1-800-698-9077.
A program that provides health care insurance for low-income older (age 65+) and disabled adults. It also covers nursing home care for eligible individuals. Contact your Department of Workforce Services for eligibility information by calling 800-662-9651.
For insurance counseling and assistance, visit the Utah Insurance Department at https://insurance.utah.gov/.
Protects the integrity of the Medicaid Program and the safety and property of institutionalized citizens of the State of Utah, through skilled detection, pro-active investigation, prosecution, and financial recovery. Visit www.medicaidfraud.utah.gov or call 800-244-4636.
Waivers allow Medicaid to pay for support and services that help people live safely in their own homes or the community. Each program has specific requirements and benefits.
Visti https://medicaid.utah.gov/medicaid-long-term-care-and-waiver-programs/ and https://medicaid.utah.gov/ltc/
Provides detailed information on quality performance of every Medicare and Medicaid certified nursing home, home health agency, and hospice agency in the state. Visit www.medicare.gov/NHCompare/home.asp
Links you with resources to get the prescriptions you need. You must qualify for services. Visit www.health.utah.gov/rxconnect.utah or call 866-221-0265.
For nearly 40 years, the Seniors Blue Book has helped Millions of Seniors & Caregivers navigate the confusing world of Senior Housing, Senior Care, Resources and Services. Visit https://www.seniorsbluebook.com/.
Handles applications for retirement, disability, survivor’s Medicare and Supplemental Security Income (SSI). Visit www.socialsecurity.gov or call 800-772-1213.
State Association for Assisted Living Facilities. Site contains an online directory of member facilities. Visit https://utahassistedliving.org/ or contact 801-864-7073.
The Utah Association of Community Services (UACS) consists of over 40 private provider agencies that serve over 5,000 people with developmental and other types of disabilities in over 400 different locations throughout Utah.
The Utah Center for Assistive Technology (UCAT) is a statewide resource offering information and technical services to help people with disabilities acquire and use assistive technology devices. UCAT offers free evaluations to anyone within the state of Utah. Visit https://jobs.utah.gov/usor/vr/services/ucat.html, call 801-887-9380, or email firstname.lastname@example.org.
The Utah Developmental Disabilities Council is established by Executive Order of the Governor of the State of Utah in compliance with the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (Public Law 106-402). The purpose of the Council is to advocate for, and strengthen leadership skills in, individuals with disabilities and their families. Visit https://www.utahddcouncil.org
State Association for Nursing Homes and for some of Utah’s Assisted Living Facilities. Site contains an online directory of member facilities. Visit http://www.uthca.org/ or contact (801) 486-6100.
Ombudsmen investigate complaints made by, or on behalf of, individual residents in long-term care facilities, including nursing homes and assisted living facilities. They also answer questions about the quality of care or financial, physical, or mental abuse in residential facilities. Visit https://daas.utah.gov/long-term-care-ombudsman/ or call (801) 538-3964.
About the Association
HHAU is a 501(c)(3) Non-Profit Organization. Your donations, membership, sponsporship and volunteerism are used to help support services provided by Utah's Homecare & Hospice industries to our loved ones, neighbors and friends. Thank You for your support!